"Coping With Memory Loss As It Spans Generations"

RENEE MONTAGNE, host:

It's time again for our series StoryCorps. This project has been traveling the country to record people talking about their lives and loved ones.

Today, we'll hear from Gwen Richards in Prairie Village, Kansas. She shared this story about her mother Helen, who was diagnosed in her 60s with Alzheimer's.

Ms. GWEN RICHARDS: My mother was the glue to our family, as I think mothers are. Everybody would come to visit mama - my brothers, everybody - we all would come to see mama. But my mom had Alzheimer's and we realized what was going on when she started getting lost.

I remember the day she went across the street to see Ms. Rednor(ph) and then she left to come home, but instead she headed the opposite direction. By this time, mama had a bracelet. I had gotten her a bracelet with her address and stuff on it. Well, a lady found her and gave her a ride home. And when she knocked at the door, it's like, mama, mama. She don't remember any of what had happened.

But, you know, it's just with this disease, even though she was physically there, we lost her. And that bothered me - it still bothers me.

It's also affected our family because now I have it as well. And because I had seen her before, I tried to tell my doctors - they didn't believe me. Oh, you look fine. How are you doing at work? Fine. What's your relationship like with your husband? Fine. If people aren't looking for it, they won't see it.

And the first test strongly suggested it; the second test confirmed it as much as can be, because it cannot be totally diagnosed until you pass away.

So the thing, which is hard for me to say, the thing that most concerns me are my children and them having to go through what I went through with my mother. And also the fact that my children could get it and grandchildren that I'll never see, possibly. Those are the things that concern me the most - not necessarily that I won't be here, but the family.

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MONTAGNE: Gwen Richards in Prairie Village, Kansas. She's been living with that diagnosis since 2008.

StoryCorps has been recording interviews with others living with memory loss. Those conversations, and all other conversations, will be archived at the Library of Congress. Subscribe to the project's Podcast at NPR.org.